This is how the CDC responded to my question about tracking OBPI:
Because CDC is not a regulatory agency, it does not have the authorityto mandate reporting of health conditions. National surveillance forpublic health conditions is conducted on a voluntary basis, usuallythrough state health departments which have their own individualreporting requirements.
Most state birth defects surveillance programs monitor malformationsthat arise during gestation, rather than abnormalities that originateduring delivery or in the newborn period. However, the Division of HumanDevelopment and Disability within our center focuses on the health ofpersons living with disabilities, regardless of the origin of thecondition. I will forward your suggestion to them.
So, I guess this is a start???? ARGH!!!!
Because CDC is not a regulatory agency, it does not have the authorityto mandate reporting of health conditions. National surveillance forpublic health conditions is conducted on a voluntary basis, usuallythrough state health departments which have their own individualreporting requirements.
Most state birth defects surveillance programs monitor malformationsthat arise during gestation, rather than abnormalities that originateduring delivery or in the newborn period. However, the Division of HumanDevelopment and Disability within our center focuses on the health ofpersons living with disabilities, regardless of the origin of thecondition. I will forward your suggestion to them.
So, I guess this is a start???? ARGH!!!!
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